A visit to the Chapel

We were visited by Dr. St. Clair early this morning. He let Ben know that he had looked at his MRI, but didn't say anything else. Later a woman Dr. who also is a neurosurgeon visited us. It was really early so I forgot to ask her name. She looked at Ben and asked us when his surgery was scheduled for. We let her know that it hadn't been scheduled and that we would be having an appointment with Dr. Lavine tomorrow. She then told us to have a relaxed day and try to get up and explore. Terry and Marla came over early this morning so I could go back to the hotel and take a shower. Also so I could feed Raider. The last couple of nights has been difficult for me since they were the first times I had ever been away from him overnight. Also he has been refusing to eat from a bottle during the night which is totally fine for a baby his age, but crazy considering it seems like he eats more at night that during the day normally. He has been so amazing through all of this. Today we went for a walk around the building. We went to this area called the Park which is inside but has some shops and seating areas and stuff. We also went and visited the sundial which is this really cool glass sundial that is in one area of the building. This hospital is so amazing and huge. It is a complete maze I can't imagine how the people who work here get around. While we were wandering around we came upon the chapel. I was happy because I really wanted to find it anyway. We spent some time in there and I sang a song for Ben and Raider. Then we headed back to Ben's room so he could get his meds. Later I headed back to the chapel by myself for a little prayer and I met with the chaplain which I really needed. She prayed for Ben and the rest of the family and I headed back to Ben's room. Today was a nice relaxed day, which was nice considering tomorrow will not be. Right now Ben and I are very anxious for our appointment with Dr. Lavine. As much as I want to know what the plan is I am also scared for what it may be. We are just praying that the doctor's will bring hope tomorrow. We will be meeting with the doctor at 12:30 central time so if you can please pray for us around this time, we would really appreciate it. Thanks again for all your support and prayer.